Last night I just cried myself to sleep. As a parent you should NEVER have to be asked if you want a “DNR” order on your child! For the last two days I’ve been playing out in my head how I would want Lilli to go…. with people standing over her poking, sticking, and attempting every last option while she is freaking out or peacefully as possible in my arms? It’s horrible and no parent should ever have to face these decisions. Only God should make it and as a parent I feel like I would be “playing God” either way!
I read a study about Plastic Bronchitis online and it said out of 12 pediatric heart patients cases 6 ultimetly passed due to complications from it! I don’t like the 50% odds as Lilli’s chance of being born with all of this was only 1% to begin with UGGG.
I’m pessimistically optimistic that maybe they are right and that last cast will be the one and only… but I have no clue how I’m going to sleep or be away from her, or go anywhere farther away from the Hospital EVER!
Hugging mama! Can you tell how sleepy we both are? Ha